So this might be a ridiculous goal but I’m publishing it to get motivated and make it happen. 😋
I’m starting this goal today and each week I’ll tell you what exercises I do to get out of my wheelchair
First I will tell you everything I did before starting this …
Step 1: Acceptance
This does NOT mean just accepting the fact you have multiple sclerosis! I thought I had done this long ago, but it took me THIRTEEN years to realize there’s no miracle drug or treatment that will fix me! I just have to work hard and make myself better!
Step 2: Eliminate fatigue
How can you work hard when you are tired all the time?
1- Go to an endocrinologist. See if there is anything that could be causing your fatigue other than MS.
So I got my lab work done, my TSH (thyroid stimulating hormone) was in the normal limits according to my primary care doctor and neurologist. But I decided to double check with an endocrinologist. She said even though my TSH was normal, it was borderline and she gave me levothyroxine. And omg that has helped significantly!
2- Fluoxetine 20 mg every night has increased my energy. Not sure why but serotonin reuptake inhibitors have shown to help with fatigue.
3-Ampyra- (dalfampridine ER10 mg twice a day ) So I take this twice daily. I think it helps my spasticity and movement
4- Don’t get sick and get your immune system up! Hmm 🤔 this is hard since I’m surrounded by doctors and a kid who goes to school
So I take a multivitamin, a B complex vitamin with C and vitamin D! Hehe don’t know if this helps but I’m trying!
5- Alpha lipoic acid- (600 mg once a day) don’t know if it does anything but my neurologist suggested I try it!
Step 3: Clean up those meds!
So anyone with a chronic condition knows that you simply start accumulating so many meds!
I am a physician so I can handle this myself. But for everyone else I would make an appointment with your primary doctor to just clean up your meds. They can advise you on what is needed and whether you need to wean off meds. They can also help figure out which doctor to ask about certain medications.
Step 4: SUIT UP!
You have to look good in order to motivate yourself 😀
I wear nicer clothes instead of pajamas. I make my mom blow dry my hair! I wear pretty earrings now!
Hehehe the small things help!
Step 5: Find a location with the Neubie device to help you train!
Apparently this device helps speed up training.
So I am going there two days a week.
Also, I train one additional day for exercise
So my 100 days starts today! Every week I’ll keep you updated! Let’s hope this works 🤞
Hi Veena,
Sounds like a great plan! I wish you tons of success!
All my best,
Allison
Thanks so much!
Hi Veena,
Sounds like a great plan! I wish you tons of success!
I am also gonna try and incorporate some of these steps.
Wishing you the very best. Thank you for sharing the suggestions!
Love, Sreedevi aunty
😊 thanks
I am looking forward To learning more while you’re on this new journey! This sounds like a great plan.
I’m rooting for you Veena! 🏆💪☺️
Aww thanks! Hopefully this works!
Veena
Great plan, keep going.
Well begun is half done.
Wish you all the best.
Rajan
Thanks so much rajan uncle!
Good luck and great success, my friend!!! Looking forward to read more often about your journey ✨
Love,
Maria
Thanks so much Maria!!
Go for it Veena – like the list -re: Suit up – have you heard of”enclothed cognition” theory – clothing choices can have a +ve impact on our self esteem and suggests they can affect our cognitive processes— fashion aside – we are what we wear !
As usual, enjoy the analysis, possible solutions, and results – As human beings we all have imperfections- we accept and try for best alternatives- looking forward to the farewell to the wheel chair🥰
Ooh I never knew that! Good to know!
Great Veena. good start. Wee all are with you. I am positive you can do it. All the best
Thanks Mary auntie! I hope this works!
You are a warrior and will make a wonderful life for yourself and your beautiful family
Aww thanks so much Kathy!
I wish you success. You know, I’ve been saying that I couldn’t walk for about 4 years now. I went to San Francisco with my husband last year and we walked along the waterfront from our hotel to fisherman’s wharf: about a mile. My hip and leg were quite sore and I was complaining like crazy so we took a bus back. I started biking more and more and walking less and less. The biking helped my hip mobility. This summer I went to Paris for 2 weeks. I didn’t want anyone to know I had MS, so I kept walking despite the discomfort in my hip. I averaged 13,000 steps a day! I no longer say I can’t walk.
Wow!! That’s awesome! I have to be like you!
Veena : This looks like a really good challenge you are setting yourself against . I will be rooting for you and looking for the updates . All the best Veena .
Sreekala Aunty