Category:Uncategorized

It’s Day 10…ahh time is flying by! I’m figuring out how to get out of this wheelchair by using what makes sense in my own silly head and with the Neubie device  🤪  I’m basically thinking about my newborn nephew! The poor guy is currently lying on his back and staring at the ceiling…but soon …
Continue reading Day 10- The goal…

So this might be a ridiculous goal but I’m publishing it to get motivated and make it happen. 😋 I’m starting this goal today and each week I’ll tell you what exercises I do to get out of my wheelchair First I will tell you everything I did before starting this … Step 1: Acceptance This does …
Continue reading How to lose a wheelchair in 100 Days

So I saw an urology PA for my bladder and one thing she said stuck with me…why are you NORMALIZING everything? Hehehe so why do I normalize things? I just want to enjoy life no matter what 😀 If I didn’t normalize things, I would go crazy! I mean I agree there is a fine …
Continue reading Why are you normalizing everything??

So I’ve been doing okay! But generally everything has been going on a downwards trend. I’ve decided I’m going to fix myself! I am not giving up until I get myself out of this wheelchair! But in the meantime… So every day I come up with a new theory:  I just figured out that a …
Continue reading It’s all in your head!

I was slowly pushing my walker along and making my way to the bathroom, when I overheard my husband on the phon“It hasn’t been working for two weeks now!” he insisted. 🤔 Hmmm true I haven’t been walking properly for two weeks . “It’s done this before but then it started working again.”  Well , …
Continue reading The Veena Help-line

Good news! It worked! Three weeks in the hospital, being bombarded with chemotherapeutic drugs, getting blood transfusions and losing all my hair was worth it! I’m no longer on any medications for my MS and it’s been a year and half and my MRI shows no new lesions. Okay now for the bad news… I …
Continue reading HSCT- it worked, but why do I still feel terrible …

HAPPY BIRTHDAY TO ME!!!!I’m one year old today! 😯🥳I had my stem cell transplant Feb 1, 2021 and now it’s been 1 year!! I decided to google 1 year old milestones of babies, and I’m definitely on track… GrowthYour baby’s weight has likely tripled since birth. Thankfully this didn’t happen…😋 But I did gain some …
Continue reading It’s been 1 year! 😲

I passed! 😀 It’s hard to believe this treatment journey has come to an end! I just had my 6 month checkup and I passed(the treatment portion) according to the bone marrow transplant and neurology teams🥳 What does this mean? 1. Blood counts– they have all returned to normal. No transfusions necessary!  2. White blood …
Continue reading The End, for now

It’s a roller coaster!It’s been three months since my bone marrow transplant and some days have been good and others bad! 😋 I’ll be feeling strong and energetic one day, and then completely wiped out the next! In the past three months, I’ve been to the emergency room THREE times! Even one of the nurses …
Continue reading 3 Months Out

I finally was able to relax after getting back from Cleveland. No more seeing doctors daily, and getting IVs! It was awesome! I thought my body was ready to heal, but my heart had other plans. My heart had not forgiven me for putting it through all of this. So it decided to revolt and go …
Continue reading The Upset Heart ❤️