Good news! It worked! Three weeks in the hospital, being bombarded with chemotherapeutic drugs, getting blood transfusions and losing all my hair was worth it! I’m no longer on any medications for my MS and it’s been a year and half and my MRI shows no new lesions. Okay now for the bad news… I …
Continue reading HSCT- it worked, but why do I still feel terrible …

HAPPY BIRTHDAY TO ME!!!!I’m one year old today! 😯🥳I had my stem cell transplant Feb 1, 2021 and now it’s been 1 year!! I decided to google 1 year old milestones of babies, and I’m definitely on track… GrowthYour baby’s weight has likely tripled since birth. Thankfully this didn’t happen…😋 But I did gain some …
Continue reading It’s been 1 year! 😲

I passed! 😀 It’s hard to believe this treatment journey has come to an end! I just had my 6 month checkup and I passed(the treatment portion) according to the bone marrow transplant and neurology teams🥳 What does this mean? 1. Blood counts– they have all returned to normal. No transfusions necessary!  2. White blood …
Continue reading The End, for now

It’s a roller coaster!It’s been three months since my bone marrow transplant and some days have been good and others bad! 😋 I’ll be feeling strong and energetic one day, and then completely wiped out the next! In the past three months, I’ve been to the emergency room THREE times! Even one of the nurses …
Continue reading 3 Months Out

I finally was able to relax after getting back from Cleveland. No more seeing doctors daily, and getting IVs! It was awesome! I thought my body was ready to heal, but my heart had other plans. My heart had not forgiven me for putting it through all of this. So it decided to revolt and go …
Continue reading The Upset Heart ❤️

After 2 months of being in Cleveland, I missed home! It’s good to be back and drive down our beloved 7 mile road. Hehe I even got some coffee from Tim Horton’s!  But unfortunately, we have to crash at my parents’ place since there is construction going on at our house. So we’re home…but not …
Continue reading Home sweet home…kinda

So when I came back from the hospital, I couldn’t do anything! If I ended up on the floor, I couldn’t get up without someone literally pulling me up. The card Danielle sent me pretty much sums it up: At this point, my husband decided he’d become Johnny Lawrence from Cobra 🐍 Kai!  For those …
Continue reading Cobra Kai Training

After a long day, I’m sure everyone at some point wished they were a baby! You can crawl into bed and nap or eat, it’s a nice life! 😃WRONG!! I can tell you first hand that being a baby 👶 is HARD! So all the chemotherapy killed everything and now I’m starting all over again. …
Continue reading Being a baby is NO FUN!

So after 3 weeks I finally got out of the hospital. I still have to stay in Cleveland for 1 month, but at least it’s not the hospital! When I got home(temporary home), my husband and daughter had a huge balloon surprise for me! Hehe I felt like the winner of a game show! But …
Continue reading I left the hospital, but it hasn’t left me!

So the stem cell transplant was completed Feb 1. Pretty anticlimactic, if you ask me. They premedicate you with Benadryl and Ativan (i guess people get nervous). The whole thing takes about 10 minutes. And WOoHOo you have new cells🥳🎉 Now after transplant is when the adventure begins!! Mine began day 2 with a wonderful …
Continue reading The Problematic Patient (AKA bed alarm bandit)